Mom is in immense pain. I am not sure whether I would want to read this... but this blog voice some of the most painful moments I have seen in life. I say seen, because I can't even begin to feel her pain. Mom is in constant pain for the last 3 days, the headaches continue unabated. Without meals and on lesser meds (we gave up on some because it was impossible for her to keep them down in her state of nausea) she is getting weaker day by day. Days and nights melt into an unending stream of pain and fitful episodes of sleep. Living on tea and toast - something she is barely able to take in and keep down, life is at an all time low. Apparently there are no meds that can reduce the pain... what are all the multibillion dollar researches accomplishing, I wonder.
It's painful and looks like it is all just going downhill. No medication, no help, nothing for her - so what do we expect the patient to do? Just bear the pain and carry on like this? Seems like the answer is yes!
I pray to my Lord that he relieves her of the pain and just makes it easy for her and for us, especially Daddy.. He's the one who is hardest hit and the one who is bearing most of the burden. He is a darling and we had long harped on their love for each other and how they were always looking out for each other. It is sad to see the things they gave their life to wither away. Brain tumor must probably be one of teh most cruel diseases. I won't wish it upon my enemy. Lord save us all. Amen.
Sunday, December 12, 2010
Friday, December 3, 2010
Boring is good. Pain is not.
About a month ago I posted my first blog on DISGRUNTLD. Life hasn't changed much since then, at least not for the better. My mom's is still in pain :( and my baby is still babbling away incessantly while we watch him closely for occurrence of his first words LOL.
Mom's radiotherapy ended a week ago. The pains did not. Add to that nausea, indigestion, cold allergies and her constant harping on the fact that the whole treatment has done her no good. Life seems dismal sometimes, until I indulge in some guilty movie/TV watching... if there's something captivating on there then for couple of minutes life seems just okay. Just the way it has been throughout my life - not too great but nothing much to complain about. I wish that average, uneventful and boring existence would come back. Days when I would wake up to my mom planning the day's meals or cooking away in the kitchen and I would wish I had some more excitement in my life than to choose between helping her in the kitchen or not helping her. Homeliness has never been my way of choice - but here I am trying to do the best I can while I do enough to scrape by from day to day.
Mom has been talking of her NOT getting well .. which means the obvious. Today she talked of giving to my son the jewelery which I had gifted to her three years ago. I wish I could buy back some life or at least some health by selling off that jewelry. What good did it do to her? And what good would it do to me, I wonder ...
I wish life was simple. You could just spend some money and buy happiness. Then we could all focus on just making money .. enough to buy health and happiness for our families and ourselves.
Let's see what the passing days would bring to me. Will keep the blog posted - and with more frequency than I have shown so far.
:)
Mom's radiotherapy ended a week ago. The pains did not. Add to that nausea, indigestion, cold allergies and her constant harping on the fact that the whole treatment has done her no good. Life seems dismal sometimes, until I indulge in some guilty movie/TV watching... if there's something captivating on there then for couple of minutes life seems just okay. Just the way it has been throughout my life - not too great but nothing much to complain about. I wish that average, uneventful and boring existence would come back. Days when I would wake up to my mom planning the day's meals or cooking away in the kitchen and I would wish I had some more excitement in my life than to choose between helping her in the kitchen or not helping her. Homeliness has never been my way of choice - but here I am trying to do the best I can while I do enough to scrape by from day to day.
Mom has been talking of her NOT getting well .. which means the obvious. Today she talked of giving to my son the jewelery which I had gifted to her three years ago. I wish I could buy back some life or at least some health by selling off that jewelry. What good did it do to her? And what good would it do to me, I wonder ...
I wish life was simple. You could just spend some money and buy happiness. Then we could all focus on just making money .. enough to buy health and happiness for our families and ourselves.
Let's see what the passing days would bring to me. Will keep the blog posted - and with more frequency than I have shown so far.
:)
Sunday, October 24, 2010
Learning to Deal with Sickness.
Sickness - A word that's usually meant to refer to somebody who's ill can also be applied to the rotten feeling you get at the center of your being when you come to know things that weren't on your "happy life" agenda.
A person who has lived her whole life independently can find it so humiliating and belittling to be dependent on others for things. Not even being able to convey your thoughts properly - not finding words for things you know you know. Being sick day in and day out and eating dozens of pills everyday. These are just some of the things a person with brain tumor may have to deal with. Add to that hair loss, constipation, depression and ecstatic episodes and you have your plate full.
It's not easy for the patient. Its not at all easy for the family too. Dealing with a life that's not the same as it has been for so many years is not the most smooth transition.
Brain tumor brings in several of its symptoms - things you have medicines for .. things that are best left untreated.
It's not nice. And it is really painful. Btw, it's my marriage anniversary today... and I don't feel too happy about it.. probably bcoz my hubby won't be around today. I guess I will try to spice up the romance with some lovey dovey messages. Let me take advantage of his being away. :) More on this later....
A person who has lived her whole life independently can find it so humiliating and belittling to be dependent on others for things. Not even being able to convey your thoughts properly - not finding words for things you know you know. Being sick day in and day out and eating dozens of pills everyday. These are just some of the things a person with brain tumor may have to deal with. Add to that hair loss, constipation, depression and ecstatic episodes and you have your plate full.
It's not easy for the patient. Its not at all easy for the family too. Dealing with a life that's not the same as it has been for so many years is not the most smooth transition.
Brain tumor brings in several of its symptoms - things you have medicines for .. things that are best left untreated.
It's not nice. And it is really painful. Btw, it's my marriage anniversary today... and I don't feel too happy about it.. probably bcoz my hubby won't be around today. I guess I will try to spice up the romance with some lovey dovey messages. Let me take advantage of his being away. :) More on this later....
Friday, October 22, 2010
Dealing With Death - And Life
29th of August - the day when my whole world came crashing down. Life as I knew it, would never ever return. The realization was shocking, the implications more so.
My mom had been having memory and verbal problems for about a month or so. Right at the onset we laughed it off as mere absent-mindedness. As the unusual behavior continued raising our level of concern, the next thing to be blamed were the arthritis meds that her new doc had prescribed. He was consulted and he put it down to old age (for the record, my mom is just 58) and stress. Two more weeks were spent changing medications, dealing with their side effects, waiting for them to take effect before changing them to deal with newer symptoms that seemed to be developing and increasing in intensity each day. Well, finally we consulted a neuro-physician. He examined her and suspected partial paralysis. Of course, he prescribed all tests. The test results came out on 29th.
The verdict was damning. It was a brain tumor. My father tried to put it in other terms and avoided the word "tumor" but thanks to my penchant of reading stuff that was none of my concern, I was sure he meant exactly that - TUMOR.
I googled the most damning words in the MRI report - "high grade glioma". The results were nothing short of ... well, shocking. High grade glioma turned out to be the type that had the worst prognosis. No actual treatment - only surgeries and medication to .. ahem .. delay the process, maybe by a few months. Best was one year. Worst, 3 months.
I looked up miracle cures and diets and having found many on the internet even considered buying them. After a shitload of research, I realized that brain tumor has NO cure. The type - high grade glioma had the least life expectancy.
I had never imagined my child growing up without his grandmother. In fact, I had often joked to my husband that once the child enters school, the first few years' home-tutoring would be taken care of by my mom.
I cried days and I cried nights. I have never actually felt so hopeless. My mom was decaying in front of my very eyes and I couldn't do much. So much pain because the most precious relation of my life would become history. I cried for days on end. I cried when my husband told me to be brave about it. I cried in the lap of my elder sister. I cried in the kitchen, in the bath, in sleep and when I woke up. The world, for me, had slowed down to a painfully slow speed, if not stopped.
Pain is a curious thing and so is life. You get used to both of them at a certain point. And you learn to hate the pain in your life and love the life amidst your pain. Life had a new meaning for me. My son, now seemed so much more precious and lovely. My mom's eccentricities and stubbornness so much more adorable and my dad's irreverence so much more lovable. I love you Lord. I love you life. I love you mom.
My mom had been having memory and verbal problems for about a month or so. Right at the onset we laughed it off as mere absent-mindedness. As the unusual behavior continued raising our level of concern, the next thing to be blamed were the arthritis meds that her new doc had prescribed. He was consulted and he put it down to old age (for the record, my mom is just 58) and stress. Two more weeks were spent changing medications, dealing with their side effects, waiting for them to take effect before changing them to deal with newer symptoms that seemed to be developing and increasing in intensity each day. Well, finally we consulted a neuro-physician. He examined her and suspected partial paralysis. Of course, he prescribed all tests. The test results came out on 29th.
The verdict was damning. It was a brain tumor. My father tried to put it in other terms and avoided the word "tumor" but thanks to my penchant of reading stuff that was none of my concern, I was sure he meant exactly that - TUMOR.
I googled the most damning words in the MRI report - "high grade glioma". The results were nothing short of ... well, shocking. High grade glioma turned out to be the type that had the worst prognosis. No actual treatment - only surgeries and medication to .. ahem .. delay the process, maybe by a few months. Best was one year. Worst, 3 months.
I looked up miracle cures and diets and having found many on the internet even considered buying them. After a shitload of research, I realized that brain tumor has NO cure. The type - high grade glioma had the least life expectancy.
I had never imagined my child growing up without his grandmother. In fact, I had often joked to my husband that once the child enters school, the first few years' home-tutoring would be taken care of by my mom.
I cried days and I cried nights. I have never actually felt so hopeless. My mom was decaying in front of my very eyes and I couldn't do much. So much pain because the most precious relation of my life would become history. I cried for days on end. I cried when my husband told me to be brave about it. I cried in the lap of my elder sister. I cried in the kitchen, in the bath, in sleep and when I woke up. The world, for me, had slowed down to a painfully slow speed, if not stopped.
Pain is a curious thing and so is life. You get used to both of them at a certain point. And you learn to hate the pain in your life and love the life amidst your pain. Life had a new meaning for me. My son, now seemed so much more precious and lovely. My mom's eccentricities and stubbornness so much more adorable and my dad's irreverence so much more lovable. I love you Lord. I love you life. I love you mom.
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